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Showing posts with label Chordoma’. Show all posts

Budding 5-year-old artist with rare type of cancer: ‘Help Aedan Pio Fight Chordoma’

Unknown 3:40 PM 5YearOld , Aedan , Artist , Budding , cancer , Chordoma’ , Fight , help , rare , TYPE

<ul><li style="text-align: justify;">Aedan Pio Pascual-Malvar  is a budding  5-year-old painter</li> <li style="text-align: justify;">He is one of the winners of the international <a href="http://www.rareartist.org/portfolio/aedan-pio-pascual-malvar/">Rare Artist competition</a>, Kids category </li> <li style="text-align: justify;">He suffers from chordoma, a rare type of cancerous tumor</li> <li style="text-align: justify;">He needs to undergo proton beam therapy which costs about P11 million ($ 250,000) in the US</li> </ul>MANILA, Philippines –  Five-year-old Aedan Pio Pascual-Malvar from Cainta, Rizal was diagnosed with chordoma; a rare type of cancerous tumor that can occur anywhere along the spine — from the base of the skull to the tailbone. He was diagnosed with the dreaded tumor when he was four years old. <div id="attachment_242711" style="width: 310px;" class="wp-caption alignright"><a href="https://web.facebook.com/aedanpio/photos/a.957754284266785.1073741828.957739574268256/967666113275602/?type=3&theater" rel="attachment wp-att-242711"><img alt="Photo Credit: Aedan Pio" class="size-medium wp-image-242711" facebook="" fight="" for="" s="" src="http://kickerdaily.com/wp-content/uploads/2016/03/11885235_967666113275602_5298618890878221218_n-300x165.jpg" the="" uncommon=""/></a> Photo Credit: Aedan Pio’s Fight for the Uncommon Facebook Page </div> His mother, Jesrora Marie Malvar said they were alarmed when Aedan Pio started having headaches and when his speech became slurred. When they brought him to a medical institution for a check-up, both the surgeon and neurologist suspected he has a giant cell tumor. In June last year, he became cross-eyed so they brought him to the ophthalmologist who advised them to do an MRI again. On the Facebook page <a href="https://web.facebook.com/aedanpio?_rdr">Aedan Pio’s Fight with the Uncommon</a>, it was disclosed that the child was admitted to the Philippine General Hospital on July 4 of last year and he underwent craniotomy four days after. 40% of the tumor was removed but the biopsy revealed that Aedan Pio has chordoma and the possible treatment is proton beam therapy; an advanced form of radiation therapy that uses protons rather than traditional X-rays. It targets tumors and cancer cells more precisely. Unfortunately, this treatment is not available in the Philippines. In the United States, this will cost about P11 million ($ 250,000). Aedan Pio is a budding painter who also aspires to become an astronaut. He loves to draw planets. In fact, he joined the <a href="http://www.rareartist.org/portfolio/aedan-pio-pascual-malvar/">Rare Artist</a> competition and became one of the winners. He was supposed to accept his award last March 3 during the Rare Disease Week on Capitol Hill in Washington DC, but he was unable to go and personally accept his award. <div id="attachment_242712" style="width: 219px;" class="wp-caption alignright"><img alt="Photo Credit: Aedan Pio" class=" wp-image-242712" facebook="" fight="" for="" s="" src="http://kickerdaily.com/wp-content/uploads/2016/03/12800393_1072236826151863_315509345716200161_n-169x300.jpg" the="" uncommon=""/>Photo Credit: Aedan Pio’s Fight for the Uncommon Facebook Page </div> He received a <a href="https://www.facebook.com/aedanpio/photos/a.957754284266785.1073741828.957739574268256/1078347078874171/?type=3&theater">treat</a> on March 14 when a friend took him and his Mom to the zoo and he said: “It was my first time to play and touch real animals!” A <a href="https://www.gofundme.com/aedanpio">GoFundMe page</a> was set up to make the needed treatment possible — Help Aedan Pio Fight Chordoma. He was featured on March 11 by ABS CBN’s <a href="https://www.youtube.com/watch?v=M3i-87QvaZU">Bandila</a>: <iframe width="620" height="465" src="https://www.youtube.com/embed/M3i-87QvaZU?feature=oembed" frame allowfullscreen></iframe> Watch his story below: <iframe width="620" height="349" src="https://www.youtube.com/embed/2qNP-m5ZJc8?feature=oembed" frame allowfullscreen></iframe> This is his mother’s interview that was aired on Bandila last March 10. <iframe width="620" height="465" src="https://www.youtube.com/embed/M3i-87QvaZU?feature=oembed" frame allowfullscreen></iframe> <a href="http://kickerdaily.com/artist-rare-type-of-cancer-help-aedan-pio-fight-chordoma/" rel="nofollow">Kicker Daily News</a>

Aedan Pio Pascual-Malvar is a budding 5-year-old painter He is one of the winners of the international Rare Artist competition , Kids cate...